Welcome to the Neuroblastoma Society Website
Neuroblastoma is a rare and aggressive childhood cancer.
About a hundred children in the UK are diagnosed each year.
The Society works exclusively for these children in raising funds for British research into the disease, and offering information and support for anyone affected by neuroblastoma.
On this website you can find:
- Information about neuroblastoma - see FAQ or download the Society's Booklet for Parents
- Details of our befriending arrangements - speak to a parent who has experience of the disease
- What the Neuroblastoma Society does in search of a cure - find out about current research
- How you can help us - organise a fund-raising activity or make a donation
- How you can join the Society
- A downloadable book suitable for pre-school children about being treated for cancer
Medical News and Announcements
CALL FOR GRANT APPLICATIONS. The Neuroblastoma Society invites applications for UK-led research that will benefit children with neuroblastoma.
The closing date for receipt of applications is 9th January 2012 for work to start on 1st August 2012 or later.
The Trustees expect to notify applicants of funding decisions in June 2012.
For further instructions on how to apply, application forms and further details please click here.
The 2011 NEUROBLASTOMA RESEARCH SYMPOSIUM was held on FRIDAY 14th OCTOBER 2011 at the Institute of Child Health in London in collaboration with SIOPEN (International Society of Paediatric Oncology European Neuroblastoma) and the UK CCLG (Children's Cancer and Leukaemia Group).
This Symposium is currently being written up and a lay summary will be available for download on the Symposium 2011 page by the end of February.
IMMUNOTHERAPY AND HIGH RISK NEUROBLASTOMA
This document gives information about the current UK/Siopen antibody trial, its status and eligibility criteria. To view the Consensus Document please click here.
NEUROBLASTOMA RESEARCH SYMPOSIUM 2010 – Future Treatments for High Risk Neuroblastoma
A lay summary of Symposium proceedings held on FRIDAY, 3rd DECEMBER 2010 at the Cancer Research UK Cambridge Research Institute, CAMBRIDGE, was distributed with the Spring 2011 Newsletter, please click here for a copy.
A scientific summary of the Symposium was published in the journal 'Paediatric Blood & Cancer', 2011 Sept. 15, doi: 10.1002/pbc.23329.
Further details are available on the Symposium 2010 page.
Antibody Treatment (antiGD2) trial for high risk neuroblastoma patients
Children in the UK with high risk neuroblastoma are set to benefit from a new international clinical trial – funded by Cancer Research UK – which uses immunotherapy to help prevent the disease from coming back.
The phase III trial, which opened in the UK in December 2009, builds on early promising results from a US study, which found that treatment with immunotherapy – boosting the immune system to fight the disease – improved the chances of survival from the disease.
Download the Cancer Research UK press release here for further details.
New Staging System for Neuroblastoma
A new internationally agreed staging system, used in conjunction with a new risk classification system and based on analysis of clinical data from 8,800 children, is being introduced.
The expectation is that this will allow a more precise matching of the risk of therapy with the risk of disease.
The adoption of these definitions worldwide will allow more accurate comparison of treatment strategies.
Download details here.
General News and Announcements
Children's Cancer and Leukaemia Friend's Day
Organised jointly by the Oncology Section of the Royal Society of Medicine and the Children’s Cancer and Leukaemia Group,
there will be a 'children's cancer and leukaemia friend's day' taking place on Monday 14 May 2012.
For more information please see www.rsm.ac.uk/academ/occ05.php.
Audio CD 'Songs for All Seasons'
Produced by the children from Kimbolton Prep School.
Download an order form here.
Neuroblastoma £1 Million Appeal
Help us fund the research that will make better treatments available.
Read more here.
Christmas Cards & Notelets
Society Christmas cards are available from October.
Please contact Shirley Clark on e-mail: publicity@neuroblastoma.org.uk if you would like to receive a flyer when they are available.
Society Newsletters
Keep up to date about recent developments in treatment as well as general information about the Society’s activities by downloading our regular newsletters here.
Spring Conference and AGM 2011
A report of the day can be found in the Summer 2011 Newsletter.
Popular Running Events
The Society has managed to secure guaranteed places in a limited number of running events during 2011, and is now on the lookout for volunteers to participate and raise sponsorship money.
Runners are asked to pledge to raise a minimum amount of sponsorship for the Society and in return will be sent a fundraising pack which includes Gift Aid approved sponsor forms, posters,
information on setting up a Just Giving page together with a society T shirt or running vest. Details of the events appear on the Fund-raising page.
The Adventures of Parker the Parrot Book - A new children’s reading book has been written by Jenny Homfray in memory of her grandson Felix Mason and she will generously donate half her royalties to the Society.
See further details and an application form on the News page.
